Brain Tumor Be Gone!!

Saturday, October 20, 2007

Dr. Jenny

I think my sister is on the cusp of an epiphany, and if not, she should be. She is doing a fantastic job stepping in to the role of healthcare and therapy advocate for dad. I am so proud of her. She might have found her calling. After I left, I kind of passed the baton on to her, and boy has she ran with it. We are trying to parlay his therapy into his everyday life as much as possible, and Jennifer is making sure that every moment is a teachable moment. She is organized, determined and compassionate.

Here's a picture of dad's white board, which he wrote down his daily activities. They're working on getting him assimilated with a planner, with the goal of getting him to use a PDA at some later juncture.

I received a nice email through the online support group from a man in Australia. He reminded me that the abundance (or over abundance) of seizure medications not only suppresses seizure activity in the brain, it suppresses a lot of normal activity too. So much of dad's current condition is a result of the high levels of seizure meds, and, as this man put it, having egg beaters whirled around in the grey matter. It takes 6 months to a year just to recover. All this I know, but need to be reminded of. Time and patience are of the essence.

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