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TRIUMPHANT LOWELL

Brain Tumor Be Gone!!

Friday, August 8, 2008

Rhonda's Masterpiece

Posted by Darcy at 7:29 AM No comments:
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TRIUMPHANT LOWELL

Brain Tumor Be Gone!!

Dad and Darc Christmas 2008

Dad and Darc Christmas 2008
Dad and Darc Christmas 2008

Music Inspired by Dad


Still Daddy's girl

Still Daddy's girl

Me and dad, circa spring 1988

Me and dad, circa spring 1988
This was taken just days before his first craniotomy

Dad and Sonny, August 2007

Dad and Sonny, August 2007

Mom & Dad, November 2007

Mom & Dad, November 2007

Thanksgiving 2006

Thanksgiving 2006
Proud Grandparents

Status Overview

*MRI 4/09 - no change. Continuing chemo.
*MRI 1/09 - no change. Protocol will stay the same. :)
*MRI 11/08 - area seen indicating new tumor growth, not enhancing, possibly slow-growing, sent home from Dr. N-O with first week of Temador
*MRI 6/08 - first visit with new neuro-oncologist in Dallas, nothing to report
*MRI 3/12/08 - no new growth! No hygroma or arterial issues.
*3/6/08 - cut loose from organized out-patient rehabilitation therapy, which included physical, speech, occupational and neuro-psychological therapy
*2/19/08 - something strange seen on CT concerning main brain artery, but hygroma looks the same or better
*12/17/07 - positive rehabilitation evaluation- progressing in therapy as opposed to regressing a few weeks ago.
Developed hygroma in tumor cavity, waiting to hear how to proceed, causing tiredness, confusion
* MRI 11/29/07 - No new growth!
* Still in out-patient rehabilitation, including speech therapy and physical therapy
* Down to Keppra only for seizures

Links

  • Support a cause my dad believes in- ending nuclear power (he grew up near a nuclear power plant....draw your own conclusion here....we have)
  • Postcards From Dallas - All Ava & Ian All The Time
  • MIT's Brain Trust
  • The Brain Tumor Society

Blog Archive

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      • Rhonda's Masterpiece
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  • ►  2007 (56)
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    • ►  August (11)

About Me

My photo
Darcy
Dallas, Texas
I am the daughter of 2 cancer survivors - 1 who's still waging the war and winning. I miss my friends and family in Oregon, but have come to love my new home state of Texas. I have also learned that I am not the only liberal, tree-hugger in North Texas...whew!
View my complete profile

BT History At A Glance

* Diagnosed with brain tumor 1987 after seizure, watch and wait
* 1st surgery 1988, confirmed oligodendroglioma stage 2.5, followed by radation therapy
* seizures started December 2004, MRI showed enhancement, 2nd surgery January 2005, pathology found scar tissue, no recurrence of tumor
* seizures started August 2007, MRI showed enhancement, slipped into seizure coma, emergency 3rd surgery, pathology confirmed recurrence of oligodendroglioma stage 2.5
* rehabilitation ongoing
* MRI November 2007 shows no new growth!
*As of November 2008, treating possible regrowth with ongoing Temador (oral chemo)